Calling all Grandmas with Heart

Hi, I am hoping there might be a grandma, grandpa, aunt or uncle out there who is living with the reality of a grandchild (niece or nephew) with CHD and wants to talk about it. My little guy was born with interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He is the bravest person I know.

Drew just had his 3rd open heart surgery at Stanford University. He is 4 years old and doing great after a 6 week hospital stay. His parents, my daughter and son in law, could not be doing a better job raising him and his 2 year old sister. However, I sometimes find that I can't let out my true feelings to them, as they are going through enough of their own fear, conflict, etc.. I try to just listen and offer encouragement but sometimes its hard to know what to say and its hard to keep my own fears, thoughts, etc in all the time. I know they can't possibly feel what I feel, but I bet you can if you're in this situation and I'd love to talk about it. It is hard to be the mother of a mother with a heart baby. Its hard to see her cry her eyes out over other heart babies that she knows. Its beautiful to see her help them and reach out to them and watch her give them her support, though, and I'm wondering if I can do the same with other moms, dads, and relatives of special children like me that have special children of their own.