Monday, April 6, 2009

Elijah's Legacy

Elijah was a ray of sunshine in the lives of an entire family that didn't even know they needed and craved the warmth until he was born and brightened their lives. DiGeorge Syndrome claimed his sweet little life but his legacy will live on forever and his grammie would like your help. Grammie is fighting for other families that are facing the shock, the questions, the uncertainties of DiGeorge. Please visit her site at and let her know if you have something to add to her ever-growing network of support and educational articles about DiGeorge and please share it with those that may benefit from what she has to share.

Thanks, Grammie, your strength is an inspiration to us all!


grammie said...

Thank You, Thank You, Thank You!
For helping with our cause.
One year ago tomorrow, we were on our way to Boston to have a pulmonary artery built for Elijah.
After 6 grueling weeks there we came home with high hopes for his future.
Little did we know, that the lack of knowledge in the medical profession here was so profound and would cost us so much.
I can't bring my ANGEL back, he's been gone just over 4 months now, but we're hoping to help others. Again, Thank You from the bottoms of our hearts...

Hoping you are all well and have a Happy Easter :)

grammie said...

How is little Faith's family?
Haven't heard from you.

Hope you're all well.


grammie said...

Just wanted to pop in & tell you we just opened a new social network.
Please feel free to add info. encourage others to chat and make suggestions. Just b/c I no longer have my Baby Beans with me doesn't mean I won't always be his voice and would love to hear from and about all of you.

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